Community Center

My husband was diagnosed last August with wild type ATTR amyloidosis in his heart. So we are in learning mode. He is on Attrudy. Last night we went to ER. He is…

Asking the right questions before starting amyloidosis treatment can feel overwhelming, from understanding how it works to navigating insurance coverage, but it…

TOMORROW'S SESSION Emerging Roles of TTR in ATTR-CM and Your Overall HealthWednesday, May 6 6:00 PM – 7:00 PM America/New_YorkWhat is transthyretin (TTR) and…

Cardiac Amyloidosis Can Cause a ‘Stiff Heart’—10 Symptoms To Know See link below More here bit.ly/3PmtzhV 

New findings show that Wainua may offer similar benefits for both men and women living with hATTR-PN.In an exploratory analysis from the NEURO-TTRansform trial,…

AI can now screen for a deadly, underdiagnosed condition using data you already have. ATTR-CM (transthyretin cardiac amyloidosis) is massively underdiagnosed…

I have wt attr-cm.   I have heard that Amyloidosis is rare....I am the fourth person I know with this disease . Including myself two with AL, two with wt Attr-…

Rare diseases are rarely confined to just one organ system . . . and patients often live that reality every day.In a recent Rare Disease Advisor column, Faye Adams…

Amyloidosis includes several different diseases, each with its own causes and symptoms.

Has anyone else had these two diagnosed together? I’m scheduled for adrenal gland surgery. Not sure if I should go through with it until amyloidosis has been…