Community Center
May 17, 2026
I have hereditary ATTR CM Amyloidosis that has not yet manifested. At least that is what the doctors say. I have none of the typical heart or nerve problems. My…
May 17, 2026
What’s the difference between #wildtype and #hereditaryATTR amyloidosis?Both involve the #transthyretin (TTR) protein, but they have different causes and patterns…
May 17, 2026
Most older adults with transthyretin cardiac amyloidosis (ATTR-CM) experienced at least 6 months of delay in diagnosis after a first heart failure (HF) diagnosis.…
May 16, 2026
In this #JACCHF review, Dr. Parag Goyal et al. summarize current clinical strategies for predicting risk of transthyretin amyloid cardiomyopathy, highlight…
May 15, 2026
Navigating specialists, symptoms, and treatment options with ATTR-CM isn’t easy. Here are ways to advocate for the care you deserve. https://bit.ly/3P8rkP5
May 15, 2026
A patient with heart failure, kidney disease, neuropathy, weight loss, and GI symptoms may not have multiple separate diseases.They may have AL amyloidosis.AL…
May 15, 2026
My cardiologist suspects Al amlyoidosis due to LVH on echo and I had MM years ago. I am being watched with blood tests because now I have MGUS.My cardiac mri is on…
May 15, 2026
New expert insights in transthyretin amyloid cardiomyopathy (ATTR-CM) from ESC Heart Failure Congress 2026 exploring updates in cardiomyopathies https://ow.ly…
May 14, 2026
Strong hearts start with informed action.
In this webinar recording, the National Minority Quality Forum presents Strong Hearts, Strong Communities: Taking Action…
May 14, 2026
So I just found out that my amyloidosis is AL light chain. What type of treatment do they do for that?