Community Events

Follow Katherine through a yoga lesson aimed to increase strength, flexibility, and balance without straining. Movements are gentle to accommodate various physical…

The Food and Drug Administration (FDA) will host Rare Disease Day, a virtual public meeting, on Monday, February 23, 2026 in global observance of Rare Disease Week…

NORD and Yale Genetics are hosting a Rare Disease Day celebration at the Yale Peabody Museum! Join us for a night of community building & connection. Attendees…

Join NORD’s Pennsylvania Rare Action Network for a virtual Rare Disease Day celebration on Friday, February 20 from 12pm to 1:10pm ET

Join NORD’s Vermont Rare Action Network (RAN) for a Rare Disease Day advocacy event in Montpelier at the Statehouse on Thursday, February 19 from 4pm to 6pm. This…

JACC: Case Reports is seeking high-impact case reports that advance clinical understanding of cardiac amyloidosis, encouraging submissions that showcase diagnostic…

The rare disease community needs More Access Than You Can Imagine! This Rare Disease Day, the NORD Rare Disease Centers of Excellence (RD CoE) Program will…

The Rare Disease Symposium 2026 is hosted by the UCSF Catalyst Program and Institute for Human Genetics, in partnership with Foundation Ipsen. Rare diseases affect…

Join the National Organization for Rare Disorders® for a webinar focused on state advocacy on Thursday, February 12 at 1pm ET! We’ll be rolling out the 11th annual…

Webinar Session: Wednesday, February 11th at 6 PM (ET) Zoom Meeting(These sessions will not be recorded due to patient involvement and HIPAA laws)To Register …