Community Events

The University at Buffalo Jacobs School of Medicine and Biomedical Sciences and School of Pharmacy and Pharmaceutical Sciences are hosting their annual symposium to…

The 2026 Joint Rare Diseases Symposium, co-hosted by CHOC Research Institute, now part of Rady Children’s Health and the University of California, Irvine (UCI),…

The South Carolina Rare Disease Advisory Council (RDAC) will be hosting its 3rd annual Rare Disease Symposium on Friday, February 27th at Segra Park in Columbia, SC…

Join the New York Center for Diseases on Friday, February 27, 2026 for their Rare Disease Day 2026 Symposium! The agenda will focus on cutting edge developments in…

Rare Disease Day at the National Institutes of Health (NIH) will be held at NIH Main Campus (Natcher Conference Center) on Friday, February 27, 2026 from 9am to 5pm…

Join NORD’s Tennessee Rare Action Network for a Rare Disease Day celebration on Feb. 26, 2026 at Vanderbilt Children’s Hospital. We will be showing a short film by…

WashU Medicine has joined forces with over 25 million Americans living with a rare disease and health care advocates around the world to celebrate Rare Disease Day…

Learn more about the role of imaging in the diagnosis and management of amyloidosis from Dr. Ahmad Masri, Director of the Cardiac Amyloidosis Program, Associate…

Webinar Session: Wednesday, February 25th at 6 PM (ET) Zoom Meeting(These sessions will not be recorded due to patient involvement and HIPAA laws)To Register …

Join NORD’s New York Rare Action Network (RAN) for an advocacy event in Albany at the State Capitol on Tuesday, February 24 from 9:30am to 4pm. This is your chance…