Community Events

The introduction of anti-amyloid monoclonal antibody therapies for Alzheimer’s disease highlights the growing importance of ARIA (Amyloid-Related Imaging…

In this episode of JACC This Week, Dr. Harlan M. Krumholz and Dr. Carolyn S.P. Lam discuss a dedicated issue of JACC focused on cardiac amyloidosis—one of the…

Harvard Medical School’s (HMS) UDN and Countway Library of Medicine are very excited to invite you to our 2026 February Rare Disease Month Programming. For the most…

To everyone touched by transthyretin (ATTR) amyloidosis; through diagnosis, genetics, or love, come sit with me for a moment.My father's ATTR diagnosisSo, there we…

Raising Youth Voices is a global collaboration between the National Organization for Rare Disorders (NORD), EURORDIS-Rare Diseases Europe, and Rare Diseases…

Event DetailsMarch is Amyloidosis Awareness Month, dedicated to raising awareness of this rare disease, emphasizing the importance of early diagnosis, and…

Event DetailsWednesday, February 11, 2026, 5:00 - 6:30 PM ESTThe Door163-07 Baisley Blvd, Jamaica, NYHosted by: Christopher OrtizProgram Topic: Hereditary ATTR (…

Each year, landmarks, homes, and communities across the country light up in red to honor those affected by amyloidosis and to raise awareness of this rare disease.…

EMPOWER CHANGEYour Voice Matters in Building a Rare Disease Advisory CouncilJoin the coalition of rare disease patients, experts, and advocates like you to push…