News

At Porterhouse, we are proud to support World Amyloidosis Day.  Our article shines a light on this rare condition to help drive greater understanding, improve…

Clinical Psychologist Rosalind Kalb, PhD shared helpful advice, self-care tips, and real-life strategies to make daily life a little easier for both Care Partners…

Mohamad Mohty, Head of the Clinical Hematology and Cellular Therapy Department at Saint-Antoine Hospital, Sorbonne University, shared a post on X:“Join us for this…

AbstractTransthyretin (TTR) amyloidosis manifests in two distinct forms: hereditary (ATTRv) and wild-type transthyretin amyloidosis (ATTRwt). Despite being one of…

For many living with ATTR-CM amyloidosis, recent advances have brought hope. In just seven years we have gone from no approved treatments to having a number of…

One dose of nex-z led to rapid, deep and durable TTR reductions, with mean reductions of at least 90% from baseline sustained through three yearsStabilization or…

AbstractCardiac amyloidosis is a fatal disorder caused by deposition of abnormally folded protein in the interstitial space. One of the proteins most associated…

Variant transthyretin (ATTRv) amyloidosis is a rare, inherited disorder caused by mutations in the TTR gene, leading to amyloid fibril deposition. The Balearic…

AbstractThe accumulation of amyloid fibrils has been identified in tissues outside the brain, yet little is understood about the formation of extracerebral…

Sabrina Rebello, ARC’s Senior Research Manager, presented an in-depth overview of key insights from our Annual Community Survey. This webinar focused on…