News

The South Carolina Rare Disease Advisory Council (RDAC) will be hosting its 3rd annual Rare Disease Symposium on Friday, February 27th at Segra Park in Columbia, SC…

Join the New York Center for Diseases on Friday, February 27, 2026 for their Rare Disease Day 2026 Symposium! The agenda will focus on cutting edge developments in…

Rare Disease Day at the National Institutes of Health (NIH) will be held at NIH Main Campus (Natcher Conference Center) on Friday, February 27, 2026 from 9am to 5pm…

A new system for staging of systemic AL amyloidosis, the AL International Staging System (AL-ISS) was developed and externally validated in a study with findings…

AbstractAmyloidosis comprises a heterogeneous group of disorders marked by the extracellular deposition of insoluble protein fibrils, known as amyloids, which can…

Join NORD’s Tennessee Rare Action Network for a Rare Disease Day celebration on Feb. 26, 2026 at Vanderbilt Children’s Hospital. We will be showing a short film by…

WashU Medicine has joined forces with over 25 million Americans living with a rare disease and health care advocates around the world to celebrate Rare Disease Day…

Cardiac amyloidosis can cause congestive heart failure, arrhythmias, and heart blocks, which frequently require cardiac device implantation (CDI). However, the…

Learn more about the role of imaging in the diagnosis and management of amyloidosis from Dr. Ahmad Masri, Director of the Cardiac Amyloidosis Program, Associate…

Webinar Session: Wednesday, February 25th at 6 PM (ET) Zoom Meeting(These sessions will not be recorded due to patient involvement and HIPAA laws)To Register …