News

Cardiomyopathy associated with wild-type or hereditary transthyretin amyloidosis (ATTR-CM) is a serious, progressive, and ultimately fatal disease.3,4 There is…

Despite advances in noninvasive diagnostic techniques, patients with transthyretin-mediated amyloid cardiomyopathy (ATTR-CM) in the Czech Republic still experience…

For many people living with amyloidosis, the journey to diagnosis can be long and overwhelming. Symptoms can be vague, overlap with other conditions and affect…

Jimmy Addison had just moved from Atlanta to Seneca, South Carolina, when he noticed something wasn’t right. “I started gaining weight and didn't know what was…

Each year, landmarks, homes, and communities across the country light up in red to honor those affected by amyloidosis and to raise awareness of this rare disease.…

OverviewGrab your free lunch and join us for a chill session on cardiac amyloidosis—learn, ask, and connect!Join Us for the Cardiac Amyloidosis Free Lunch &…

Held in honor of Rare Disease Day (February 28) the third annual HackRare Hackathon will take place over the weekend of February 28 to March 1 at Harvard’s Student…

Rare Disease Day Tucson emerged from a grassroots effort within the local community of Tucson, AZ aimed at celebrating the globally recognized Rare Disease Day.…

Join Jilly from Tennessee on Rare Disease Day! She’ll be operating ham radio from TN on February 28 as a “special event” station with a special callsign N4R for…

Understanding Fluid Balance in AmyloidosisFluid balance means keeping the right amount of water in the body. In amyloidosis, this balance becomes fragile because…