Key Information
Source
ChangehATTR
Year
2019
summary/abstract
As a caregiver for a loved one with hATTR amyloidosis, you begin to take on new role in your relationship. This often requires a major lifestyle change with new responsibilities, and can come along with many adjustments and challenges.
Please find some tips below for helping to take care of your loved one.
Educate Yourself:
Take the time to learn as much as possible about hATTR amyloidosis and know what to expect for your loved one along the journey. Anticipating your loved one's needs will allow you to feel better prepared when taking care of them. Doctors, patients and caregivers alike are constantly learning more about hATTR amyloidosis. Staying up to date on research may help you and your loved ones make decisions to improve their healthcare management. There are many resources available to the hATTR amyloidosis community. To learn more about external advocacy and support groups, please visit:
- Amyloidosis Support Groups
- Amyloidosis Research Consortium
- Amyloidosis Foundation
- Smart Patients: Amyloidosis Community
Abstract Source
https://www.hattrchangethecourse.com/wp-content/uploads/2019/12/US-TTR-1900249-hATTR-Change-the-Course-Patient-Resource-Guide-Low-Res-FINAL.pdf