Community Stories

Dona Osterhout was only 48 years old when she noticed that she was having a hard time keeping up when she went hiking and biking with her family. "At first, I…

When Ricardo rides his stationary bike he leaves the memory of heart failure further and further behind. After he was diagnosed with amyloidosis, specialists at…

Just informing everyone that on September 1, 2017, I was diagnosed with a rare blood disease called Al Amyloidosis. I call it "Amy" for short. May this year I had…

I live in Los Angeles in California but, as a performer, have had the good fortune to travel and work internationally for the past 50 or so years. My amyloidosis…

My name is Jason Conway and I am a husband, father, teacher, and coach. I am 48 years old and have lived a pretty normal, healthy life. I have always been active…

Valentine's Day 2013, we received a call from my husband's nephrologist. A week earlier we had no idea what a nephrologist was. And doctors don't typically call…

The ANDROMEDA trial is a trial that is extremely important for patients who have systemic light chain or AL-amyloidosis. I'd like to begin by thanking Janssen…

Back in 2015, I went to see my primary care manager (PCM) several times because of fatigue and feeling feverish (when I didn't have a fever). My muscles and bones…

There are times when those afflicted with amyloidosis need assistance - a caregiver. In some instances, such as a stem cell transplant (SCT), the treatment is so…