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Rare diseases are rarely confined to just one organ system . . . and patients often live that reality every day.In a recent Rare Disease Advisor column, Faye Adams…

Amyloidosis includes several different diseases, each with its own causes and symptoms.

Giada Bianchi, MD, shares an overview of AL (light chain) amyloidosis – symptoms, diagnosis, current treatment options, and ongoing studies. Learn more about our…

Almost 2 years since diagnosis with AL Amyloidosis. I have it is my heart, skin, nerves, stomach and on dialysis for my kidneys. Some symptoms of low blood pressure…

Chuck, 21 years since you lost your battle with Amyloidosis, yet your love and memory remains vivid in our hearts! Amyloid took you far too soon, it never diminsed…

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This was posted yesterday on the Canadian site. I’ve never read a more compelling description of what our lives are like. I think you will find this the most…

In 2002, my mom was diagnosed with familial cardiac amyloidosis and was given about 18 months to live. By God’s divine miracle (which I will explain in another post…

Is a PYP scan enough to diagnose #cardiac amyloid? Not by itself. Learn what to order, what to rule out, and how to identify hereditary #ATTR-CM sooner. Earn 1.0…

Hi! I'm new to this group. I recently joined because my dad was misdiagnosed at first but we now know he has cardiac amlodocus wild type TTR