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May is also Ehlers-Danlos Syndromes Awareness Month, which makes sharing this story feel even more meaningful to me. 💜A year ago, I was fighting for answers while…

May 8th is National Amyloidosis Day, a day to raise awareness of this serious and often under-recognised disease.Amyloidosis occurs when abnormal proteins build up…

One Flowchart to Master Cardiac Amyloidosis (ACC 2023 Expert Consensus)

Diagnosed with ATTR cardio wild type amyloidosis few months ago. No cardiac sysmptoms. Just had hip replacement and dis red Congo stain and came back with…

This Thursday, Angelini Pharma has agreed to buy Catalyst Pharma for up to $4.1 billion, its first acquisition since 2021, which would mark its entry into the US…

Asking the right questions before starting amyloidosis treatment can feel overwhelming, from understanding how it works to navigating insurance coverage, but it…

TOMORROW'S SESSION Emerging Roles of TTR in ATTR-CM and Your Overall HealthWednesday, May 6 6:00 PM – 7:00 PM America/New_YorkWhat is transthyretin (TTR) and…

Cardiac Amyloidosis Can Cause a ‘Stiff Heart’—10 Symptoms To Know See link below More here bit.ly/3PmtzhV 

New findings show that Wainua may offer similar benefits for both men and women living with hATTR-PN.In an exploratory analysis from the NEURO-TTRansform trial,…

AI can now screen for a deadly, underdiagnosed condition using data you already have. ATTR-CM (transthyretin cardiac amyloidosis) is massively underdiagnosed…