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This morning LLLEGEND'S were joined by John and Pam TettJohn and Pam joined LLLEGENDS Back to CurboroughIt was a real pleasure to walk with John and Pam and learn…

Our trustee Julian Macleod shares his experiences of how heatwaves affect his heart condition and offers some sound advice for other heart patients.#amyloidosis #…

Diagnosis day… Today everything changed #amyloidosis  #raredisease  #mindset

Heart failure can be caused by many conditions — one of them is Amyloidosis. Early recognition matters, and education can help save lives.Join us for Love Your…

Early recognition of AL amyloidosis is critical to improving patient outcomes. This new guideline aims to raise awareness of the signs and symptoms of AL…

 Positive Phase 3 Results for ATTR-CMAstraZeneca has reported positive Phase 3 clinical trial results for Wainua in transthyretin amyloid cardiomyopathy (ATTR-…

HFSA is hosting a free webinar made specifically for women living with ATTR-CM, a heart condition caused by protein buildup that often looks different in women than…

An excellent discussion on ATTR amyloidosis with world-renowned expert Dr Ahmad Masri.

For years, cardiac amyloidosis was a diagnosis with almost nothing attached to it. Doctors understood the mechanism. They just could not do much about it.That has…

‼️ For many patients with amyloidosis, diagnosis takes too long. Months. Sometimes years. During that time, the disease may continue to affect vital organs…