Community Center

This page is to offer positive support to the family members, friends and caregivers of loved ones with amyloidosis.

Supporting #amyloidosis patients and families while promoting research, education and awareness.

It has been twelve years my father an olympic athlete was diagnosed with amyloidosis. Through the years he has had chemotherapy, dialysis, a stem cell transplant, a…

Patients, caregivers and loved ones with AL amyloidosis - If you do not answer the questions you will not be allowed to join. We have other groups on Facebook for…

Hi, I'm a bot that tweets the latest in amyloid research from PubMed. Creator: @AvinainderSingh Location: Boston, MA

My name is Jason Conway and I am a husband, father, teacher, and coach. I am 48 years old and have lived a pretty normal, healthy life. I have always been active…

Valentine's Day 2013, we received a call from my husband's nephrologist. A week earlier we had no idea what a nephrologist was. And doctors don't typically call…

The ANDROMEDA trial is a trial that is extremely important for patients who have systemic light chain or AL-amyloidosis. I'd like to begin by thanking Janssen…

Back in 2015, I went to see my primary care manager (PCM) several times because of fatigue and feeling feverish (when I didn't have a fever). My muscles and bones…

There are times when those afflicted with amyloidosis need assistance - a caregiver. In some instances, such as a stem cell transplant (SCT), the treatment is so…