UPCOMING SESSIONS in ET
Tue, May 26, 2026
5:00 – 6:00 AM Bangkok
Advocacy 101: Finding Your Voice & Speaking Up with Confidence Thomas Bartlett Click To Register
UPCOMING SESSIONS in ET
Tue, May 26, 2026 · 5:00 – 6:00 AM Bangkok
Advocacy 101: Finding Your Voice & Speaking Up with Confidence
Thomas Bartlett
Click To Register
View all sessions
Recently I saw a movie with Robert Redford, "All is Lost". Takes me back. Before we were married my future wife and I charted a bare boat Morgan 29' sloop in the…
Rare Disease Day takes place every year on the last day of February. The purpose is to raise awareness about rare diseases and their impact on patient's lives. Most…
ALECT2 Amyloidosis Support is a Facebook group that was created on 14 May, 2016. Dorothy Sintas-Abeyta is the patient representative of the ALect2 Alliance. When…
Amyloidosis Gelsolin Hereditary is a Facebook group that was created on 7 November, 2017.
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ApoA1 Amyloidosis is a Facebook group that was created on 6 March, 2018.
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Amyloidosis ATTRv (hATTR) - Hereditary - FAP - FAC is a Facebook group that was created on 7 September 2014.
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La Amiloidosis es una enfermedad que tiene varios tipos, uno de ellos y el que casualmente Mallorca, donde naci es la A.hereditaria por transtirretina el quinto…