Community Center

Free Online Medical Education Series – Save the Date!Join us on Monday, 20 July 2026 at 2:00 pm AEST for a free online education session for people living with…

Are you a medical specialist with an interest in amyloidosis?The Australian Amyloidosis Network invites Medical Specialists to become members.This membership is…

Hi I was recently diagnosed with cardiac amyloidosis. Still waiting for type to be determined. Have complained many years of weird symptoms and always told was…

Antibody linked to spontaneous reversal of ATTR-CMAn international team of researchers is now reporting the discovery of three patients with ATTR-CM–associated…

Hereditary ATTR amyloidosis can quietly affect the heart and nerves long before anyone notices.Knowing your family’s health story is more than information. It’s…

Get details: https://bit.ly/3P0m3J5Researchers are studying a new RNA-targeting approach designed to reduce the abnormal protein at the root of ATTR-CM. This update…

I’m so excited to finally share this with you all! 💙My patient story is now live on the WAINUA website.When my symptoms first started, I knew something wasn’t right…

Historically, ATTR-CM was considered a rare disease; however, it is now recognized as a more common cause of heart failure (HF) than previously thought. Despite…

Join us for the Amyloidosis Foundation Run-Walk-Bike-Roll Virtual Event! 🚴‍♀️🏃‍♂️🚶‍♀️♿From June 1 through September 8, you can participate from anywhere while…

When it comes to rare diseases, misinformation can delay understanding… and delay diagnosis.Let’s separate myths from facts ❌💙 The more we understand amyloidosis,…