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Rare Disease Day
Feb 27, 2025
TMA Hosts Patient Stories on Rare Disease Day
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Caregiver Responsibilities
Feb 26, 2025
Live-In Caregivers for Elderly
Understanding Caregiver ResponsibilitiesEmbarking on the journey of becoming a caregiver can be a complex process, particularly when it comes to live-in caregivers…
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Amyloidosis 101
Feb 19, 2025
Amyloidosis 101
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MILESTONE RUN ‘If I were to stop I mightn’t get going again’ – Brave Irish woman with incurable cancer vows to complete 600th marathon
Feb 14, 2025
MILESTONE RUN ‘If I were to stop I mightn’t get going again’ – Brave Irish woman with incurable cancer vows to complete 600th marathon
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Hidden Cost of Caregiving
Jan 23, 2025
The Hidden Cost of Caregiving: Stress, Anxiety, and Coping Mechanisms
As populations age, the need for informal caregivers is increasing. As individuals step up to provide care for loved ones in need, they face their own mental health…
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Jan 22, 2025
Clinical Trial Updates for the ATTR Community
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PR Newswire
Sep 30, 2024
National Organization for Rare Disorders (NORD) Announces $85,000 in Grant Funding for Amyloidosis and Levy-Yeboa Syndrome
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Cath Lab Digest
Sep 30, 2024
Alnylam Highlights New Data From HELIOS-B Study of Vutrisiran for the Treatment of Transthyretin Amyloidosis With Cardiomyopathy
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fap news today
Sep 30, 2024
Noninvasive eye test can help diagnose hATTR at early stage
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NORD
Sep 30, 2024
National Organization for Rare Disorders (NORD) Announces $85,000 in Grant Funding for Amyloidosis and Levy-Yeboa Syndrome
Read more

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Featured Trials

A Study to Evaluate the Safety, Tolerability, Pharmacokinetics and Pharmacodynamics of ALN-TTRSC04 in Healthy Subjects
Collection of Samples and Clinical Data From Patients With Amyloid Diseases
Ohio State University Multiple Myeloma and Amyloidosis Data Registry and Sample Resource
Bone Marrow and Kidney Transplant for Patients With Chronic Kidney Disease and Blood Disorders
Post Approval Study of Lixelle for the Treament of Dialysis-Related Amyloidosis

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