Community Center
May 24, 2024
A 69-year-old female presented with symptomatic atrial fibrillation. Cardiac amyloidosis was suspected due to an artificial intelligence clinical tool applied to…
May 08, 2024
Amara, you penned a post for our blog in May of 2022. Can you talk about what has changed with your mom since then?I’ll be honest. I’m heartbroken. The last few…
Mar 29, 2024
When Sally Cox was diagnosed with light chain amyloidosis (AL) in 2019, she was shocked. Not only had she never heard of the rare disease that causes abnormal…
Mar 16, 2024
In the realm of rare diseases like Amyloidosis, caregivers stand as pillars of strength, compassion, and support. Their unwavering dedication and selflessness often…
Mar 14, 2024
Having a genetic disease is one of life’s greatest calamities. I say this from my own experience, having been married for almost 27 years to someone who was…
Mar 13, 2024
– Family Health History Road Trip Program Aims to Inspire Conversations About Health History and Empower Families to Take Control of Their Health ––…
Mar 03, 2024
BackgroundLittle is known about what happens when patients and caregivers are involved in an academic setting as co-teachers and how healthcare professionals…
Feb 29, 2024
My hATTR story began in the mid-1960’s when my father, a healthy, strong, outdoorsy guy in his late 40’s started tripping, experiencing numbness, and having dizzy…
Feb 17, 2024
It has recently become well-established that there is a connection between Alzheimer’s disease pathology and gut microbiome dysbiosis. We have previously…
Feb 16, 2024
Target Audience and Goal StatementThis activity is intended for cardiologists, cardiothoracic surgeons and vascular surgeons, emergency medicine physicians, and…