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Community Center

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caregiveraction
Caring for Rare Disease Caregivers
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ultrarareadvocacy
Spotlight on Rare Disease Caregivers
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CSL
The Needs of Rare Disease Caregivers
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Amyloidosis
Life with AL Amyloidosis and Multiple Myeloma
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frontiersin
Leveraging stories of cardiac amyloidosis patients of African ancestry or descent to support patient-derived data elements for efficient diagnosis and treatment
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Family Health History Road Trip
Alnylam Launches Hereditary ATTR (hATTR) Amyloidosis Campaign to Help Shorten Time to Diagnosis for Inherited and Rapidly Progressive Disease
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In memory of Ann Beecroft
Ann's AA Amyloidosis Story
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neutropenia and AA
Living With Autoimmune Neutropenia and AA Amyloidosis: Ramona's Story
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Dr. Morie Gertz
Dr Gertz on the Investigation of Birtamimab in Mayo Stage IV AL Amyloidosis
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Living With hATTR Amyloidosis: CeCe’s Story
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Featured Trials

A Study to Evaluate the Safety, Tolerability, Pharmacokinetics and Pharmacodynamics of ALN-TTRSC04 in Healthy Subjects
Collection of Samples and Clinical Data From Patients With Amyloid Diseases
Ohio State University Multiple Myeloma and Amyloidosis Data Registry and Sample Resource
Bone Marrow and Kidney Transplant for Patients With Chronic Kidney Disease and Blood Disorders
Post Approval Study of Lixelle for the Treament of Dialysis-Related Amyloidosis

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