Education
Deciding to leave your job following your hATTR amyloidosis diagnosis can be a difficult and personal decision. There is no right or wrong way to go about making…
It is important to talk to your employer about your diagnosis so that they can know how you're feeling and how it may affect your work. Your manager can only help…
Being diagnosed with hATTR amyloidosis can be overwhelming, frightening and hard to process. You may be asking yourself - where should I go from here? We have…
Family History
Given the hereditary (runs in some families) nature of hATTR amyloidosis, you may have first become aware of hATTR amyloidosis through patterns in…
Amyloidosis is a systemic disorder that is classified into several types. The different types of amyloidosis are classified as systemic or localized. AL (…
Primary localized cutaneous amyloidosis (PLCA) is a condition in which clumps of abnormal proteins called amyloids build up in the skin, specifically in the wave-…
In some cases, caring for a loved one with hATTR amyloidosis can become a full time job, which can result in many changes to your daily life. Taking quality time to…
As a caregiver for a loved one with hATTR amyloidosis, you begin to take on new role in your relationship. This often requires a major lifestyle change with new…
After being diagnosed with hATTR amyloidosis, it is normal to have a wide range of feelings and have questions about how your diagnosis will change your daily…
Telling your employer about your hATTR amyloidosis diagnosis is a personal choice. If you decide to tell your employer about your diagnosis, write down what you…