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Amyloidosis occurs when abnormal, misfolded proteins deposit in different parts of the body, including the carpal tunnel in the wrist. It often builds up in the…

NEW YORK—In 2002, Don Brockman was diagnosed with amyloidosis. The following year, he and his wife launched the nonprofit Amyloidosis Foundation, and in 2007,…

The success rate of left atrial appendage closure to prevent stroke was high and the rate of complications was low in patients with cardiac amyloidosis, according…

TUESDAY, Feb. 3, 2026 -- In guidelines issued by the American Society of Hematology and published online Jan. 27 in Blood Advances, recommendations are presented…

To everyone touched by transthyretin (ATTR) amyloidosis; through diagnosis, genetics, or love, come sit with me for a moment.My father's ATTR diagnosisSo, there we…

Raising Youth Voices is a global collaboration between the National Organization for Rare Disorders (NORD), EURORDIS-Rare Diseases Europe, and Rare Diseases…

Isabelle LousadaFounder & CEOAmyloidosis Research Consortium Transthyretin amyloid cardiomyopathy (ATTR-CM), including both wild-type (ATTRwt) and…

Key TakeawaysAmyloidosis is a rare disease where abnormal proteins build up in the body, and when it affects the eye, it can cause symptoms ranging from mild…

Key TakeawaysHereditary transthyretin amyloidosis is a rare life-threatening disease caused by misfolded proteins that clump together and build up in organs…

Light chain (AL) amyloidosis is a rare, life-threatening bone marrow disorder in which abnormal amyloid proteins accumulate in organs.  Approximately 3,260…