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Register for the ATTR Patient Summit April 28 - 30, 2023 HAC/TAC is proud to present the first-ever Canadian-specific ATTR Patient Summit, an…

The FDA's Center for Biologics Evaluation and Research (CBER) Office of Therapeutic Products (OTP) is hosting a public virtual workshop on Thursday, April 13, from…

Support Group Contact: John Mathison: [email protected] Muriel: [email protected] 866-404-7539 (Toll-Free) Meeting Date: March 4, 2023…

Support Group Contact: Kay Rowley: [email protected], 866-404-7539 (Toll-Free). Meeting Date: May 20, 2023 Meeting Time: 9-11am Meeting Location Address:…

Calling all amyloidosis patients! In celebration of Amyloidosis Awareness Month, Mackenzie's Mission is creating a new FACES of Amyloidosis video. PLEASE CONSIDER…

Activity Description Achieving health equity, eliminating disparities, and improving health for all is the ideal goal within an organization. Closing the gaps to…

Individuals suffering with rare diseases had very few therapeutic options 40 years ago. But that began to change with the stroke of a pen by then-President Ronald…

Sessions on March 3, 2023 are targeted towards medical professionals while sessions on March 4, 2023 are targeted towards amyloidosis patients and caregivers. The…

Estimados Amilos, familiares y companeros: Tenemos la gran satisfaccion de invitaros este ano, y felices de podernos reunir en nuestro 4o Encuentro Anual de AMILO,…

Now in its 12th year, Rare Disease Week on Capitol Hill empowers and inspires hundreds of advocates each year. The connections you make during the week will impact…