Patient Education

Amyloidosis refers to a group of deposition diseases in which proteins with unstable structures misfold and aggregate into amyloid fibrils that deposit in different…

Amyloidosis refers to a group of diseases caused by deposits of abnormal proteins, known as amyloid, in one or more organs of the body. Deposition of amyloid in the…

Dr Simon Gibbs is a consultant haematologist (Myeloma/Amyloidosis Lead) at the Department of Clinical Haematology Eastern Health (Melbourne), Director of the…

Patients receiving chemotherapy for other conditions that are not AL amyloidosis are often told to "drink plenty" to avoid dehydration. But in AL amyloidosis, this…

hATTR amyloidosis is an inherited condition, and each child of one parent with hATTR amyloidosis has a 50% chance of inheriting the genetic variant, or change, that…

This Infosheet explains what a well-balanced diet is, what can make it difficult to maintain when you are an AL amyloidosis patient, when a special diet might be…

Sodium is a mineral that is important for maintaining normal fluid balance in the body. It is found naturally in foods and is also added to certain foods. The daily…

Cardiac amyloidosis occurs when plaques of protein byproduct called amyloid build up in heart muscle, affecting its ability to pump blood. To confirm a diagnosis…

People living with rare diseases face a unique set of challenges, from reaching a timely and accurate diagnosis to accessing treatment. Although individual rare…

Wild-type ATTR is also referred to as ATTRwt. It is not caused by any known genetic mutations, such as in the case of hereditary forms of the disease (hATTR). This…