Patient Education

Amyloidosis is a rare disease that has no cure. However, with prompt and ongoing treatment, you can help decrease symptoms and prevent or delay long-term…

The term informed consent is mistakenly viewed as the same as getting a research participant's signature on the consent form. FDA believes that obtaining a…

You may ask yourself, "Why should I try something that researchers are not sure will work?" That is a good question. Being part of a clinical trial may have risks…

It is believed that exercise is beneficial for the general well-being of patients with amyloidosis. If there are amyloid deposits in the heart then exercise should…

Many patients with AL amyloidosis should limit their fluid intake. This advice is extremely important but is often overlooked. Fluid intake should be steady and…

Peripheral neuropathy: Medications that may help to alleviate neuropathic pain include gabapentin, pregabalin and duloxetine. Medical staff can give advice…

Patients should tell the medical staff about any diarrhea they experience. Medications such as opioids (codeine and loperamide) may help by reducing gut motility.…

Both AL amyloidosis itself and treatment side effects may cause weight loss. Sometimes patients find it hard to eat and drink enough because of feeling generally…

Patients with AL amyloidosis may experience extreme tiredness, either due to the amyloidosis itself or as a side effect of some chemotherapy drugs. Tiredness can be…

Fluid overload is the most common serious toxicity experienced by patients with AL amyloidosis. Many patients with AL amyloidosis have amyloid deposits in the…