Patient Education

Finding out you have a rare genetic disease such as familial amyloid polyneuropathy (FAP) can be unsettling, especially if you live alone or planning to do so.…

A physical therapist is a member of the multi-disciplinary team that will be working with you in this clinic. Amyloidosis is a condition that happens when proteins…

Sometimes called "compassionate use", expanded access is a potential pathway for a patient with a serious or life-threatening disease or condition to try an…

Amyloidosis is a disease that develops when abnormally folded proteins collect together to form amyloid fibrils, which deposit in various organs and cause organ…

To prevent the progression of amyloidosis and the damage it can cause, your doctor should recommend a treatment plan that includes certain medications or procedures…

The term informed consent is mistakenly viewed as the same as getting a research participant's signature on the consent form. FDA believes that obtaining a…