News

Understanding Fluid Balance in AmyloidosisFluid balance means keeping the right amount of water in the body. In amyloidosis, this balance becomes fragile because…

NORD’s New Jersey Rare Action Network (RAN) is hosting a Rare Disease Day celebration at the Make-A-Wish Castle! Join us for a night of community building &…

The University at Buffalo Jacobs School of Medicine and Biomedical Sciences and School of Pharmacy and Pharmaceutical Sciences are hosting their annual symposium to…

The 2026 Joint Rare Diseases Symposium, co-hosted by CHOC Research Institute, now part of Rady Children’s Health and the University of California, Irvine (UCI),…

The South Carolina Rare Disease Advisory Council (RDAC) will be hosting its 3rd annual Rare Disease Symposium on Friday, February 27th at Segra Park in Columbia, SC…

Join the New York Center for Diseases on Friday, February 27, 2026 for their Rare Disease Day 2026 Symposium! The agenda will focus on cutting edge developments in…

Rare Disease Day at the National Institutes of Health (NIH) will be held at NIH Main Campus (Natcher Conference Center) on Friday, February 27, 2026 from 9am to 5pm…

A new system for staging of systemic AL amyloidosis, the AL International Staging System (AL-ISS) was developed and externally validated in a study with findings…

AbstractAmyloidosis comprises a heterogeneous group of disorders marked by the extracellular deposition of insoluble protein fibrils, known as amyloids, which can…

Join NORD’s Tennessee Rare Action Network for a Rare Disease Day celebration on Feb. 26, 2026 at Vanderbilt Children’s Hospital. We will be showing a short film by…