News

WashU Medicine has joined forces with over 25 million Americans living with a rare disease and health care advocates around the world to celebrate Rare Disease Day…

Join NORD’s New York Rare Action Network (RAN) for an advocacy event in Albany at the State Capitol on Tuesday, February 24 from 9:30am to 4pm. This is your chance…

The Food and Drug Administration (FDA) will host Rare Disease Day, a virtual public meeting, on Monday, February 23, 2026 in global observance of Rare Disease Week…

NORD and Yale Genetics are hosting a Rare Disease Day celebration at the Yale Peabody Museum! Join us for a night of community building & connection. Attendees…

Join NORD’s Pennsylvania Rare Action Network for a virtual Rare Disease Day celebration on Friday, February 20 from 12pm to 1:10pm ET

Join NORD’s Vermont Rare Action Network (RAN) for a Rare Disease Day advocacy event in Montpelier at the Statehouse on Thursday, February 19 from 4pm to 6pm. This…

The rare disease community needs More Access Than You Can Imagine! This Rare Disease Day, the NORD Rare Disease Centers of Excellence (RD CoE) Program will…

The Rare Disease Symposium 2026 is hosted by the UCSF Catalyst Program and Institute for Human Genetics, in partnership with Foundation Ipsen. Rare diseases affect…

Join the National Organization for Rare Disorders® for a webinar focused on state advocacy on Thursday, February 12 at 1pm ET! We’ll be rolling out the 11th annual…

Harvard Medical School’s (HMS) UDN and Countway Library of Medicine are very excited to invite you to our 2026 February Rare Disease Month Programming. For the most…