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Join NORD’s Tennessee Rare Action Network for a Rare Disease Day celebration on Feb. 26, 2026 at Vanderbilt Children’s Hospital. We will be showing a short film by…

WashU Medicine has joined forces with over 25 million Americans living with a rare disease and health care advocates around the world to celebrate Rare Disease Day…

Cardiac amyloidosis can cause congestive heart failure, arrhythmias, and heart blocks, which frequently require cardiac device implantation (CDI). However, the…

Learn more about the role of imaging in the diagnosis and management of amyloidosis from Dr. Ahmad Masri, Director of the Cardiac Amyloidosis Program, Associate…

Webinar Session: Wednesday, February 25th at 6 PM (ET) Zoom Meeting(These sessions will not be recorded due to patient involvement and HIPAA laws)To Register …

License agreement leverages UCB’s expertise in antibody drug discovery to support Refold Therapeutics' ambition of providing better treatments for patients…

Join NORD’s New York Rare Action Network (RAN) for an advocacy event in Albany at the State Capitol on Tuesday, February 24 from 9:30am to 4pm. This is your chance…

Nationwide initiative encourages health-care providers to boost rare-disease knowledge and early diagnosis  BOSTON and NORWELL, Mass., FEB 23, 2026…

Follow Katherine through a yoga lesson aimed to increase strength, flexibility, and balance without straining. Movements are gentle to accommodate various physical…

An easily accessible diagnostic test called pain-related evoked potentials with concentric electrodes (PrEP-CE) may help detect the onset of hereditary…