News

Driven by accelerating diagnosis of ATTR cardiomyopathy, sustained reliance on cost-effective chemotherapy, and rapid uptake of disease-modifying therapies in North…

Carlisle, PA…  Now in its third decade of doing good for those impacted by Amyloidosis, the Chip Miller Amyloidosis Foundation (CMAF) works year-round to raise…

NORD and Yale Genetics are hosting a Rare Disease Day celebration at the Yale Peabody Museum! Join us for a night of community building & connection. Attendees…

Join NORD’s Pennsylvania Rare Action Network for a virtual Rare Disease Day celebration on Friday, February 20 from 12pm to 1:10pm ET

Join NORD’s Vermont Rare Action Network (RAN) for a Rare Disease Day advocacy event in Montpelier at the Statehouse on Thursday, February 19 from 4pm to 6pm. This…

The rare disease community needs More Access Than You Can Imagine! This Rare Disease Day, the NORD Rare Disease Centers of Excellence (RD CoE) Program will…

The Rare Disease Symposium 2026 is hosted by the UCSF Catalyst Program and Institute for Human Genetics, in partnership with Foundation Ipsen. Rare diseases affect…

Joseph Mikhael, MD, MEd, FRCPC, FACP, FASCOInternational Myeloma Foundation Chief Medical OfficerTGen, City of Hope Cancer Center—Phoenix, AZ, USADr. Mikhael is a…

The Purple Ball gala dinner returns to Glasgow this Valentine’s Day for its 12th year, continuing to raise vital funds…

Join the National Organization for Rare Disorders® for a webinar focused on state advocacy on Thursday, February 12 at 1pm ET! We’ll be rolling out the 11th annual…